Factors included demographic, social, diagnosis, and clinical variables, along with dummy variables indicating each medication and other therapy. The scale has been translated into Chinese and was tested in Singapore and China, and the results showed that the Chinese version of PDQ-8 was verified with good reliability and validity, and the items had high correlation coefficients comparable to those of the English scale (26). (1992) 55:1814. Disease acceptance among PD patients with different demographic and clinic characteristics. We also found that PD patients with the H&Y stage of 12.5 had lower AOD scores than those with higher stages. (2015) 16:202. doi: 10.1186/s12882-015-0197-z, 10. Multiple linear regression analysis of PDQ-8. Multiple regression analysis was performed to determine the affecting factors of AOD among PD patients. The APC for the Journal of Parkinson's Disease is currently US$2000/2000 (excl. Social support could significantly influence self-efficacy in managing chronic illness (35), and PD patients also need continuous empowerment through supportive personal relationships to better QoL. Ou R, Yang J, Cao B, Wei Q, Chen K, Chen X, et al.. Dr. Okun has participated as a site PI and/or co-I for several NIH, foundation, and industry sponsored trials over the years but has not received honoraria. However, the relatively poor AOD among half of the PD patients was not unexpected. Edited by: Tzvi Dwolatzky, Technion Israel Institute of Technology, Israel, Reviewed by: Chengjie Mao, Second Affiliated Hospital of Soochow University, China; Tzung-Yi Tsai, Dalin Tzu Chi Hospital, Taiwan, This article was submitted to Geriatric Medicine, a section of the journal Frontiers in Medicine. Know the Parkinsons Disease Impact factor, Acceptance rate, Overall Ranking, h-index, Scientific Journal Ranking SJR, Aims & Scope, Publisher, and Other Important Metrics. Sinai, Muhammad Ali Parkinson Center, Tel Aviv Sourasky Medical Center and Nijmegen Parkinson Center. AOD was assessed by the revised version of the AOD scale (AODS-R), which includes 32 items and four dimensions: enlargement of the scope of values (nine items), subordination of physique (five items), containment of disability effect (nine items), and transformation from comparative values to asset values (nine items). J Occup Rehabil. NeuroRehabilitation. For example, reduced mobility and falls are common reasons for emergency hospital admissions in people with PD.[3]. Chao HL, Tsai TY, Livneh H, Lee HC, Hsieh PC. Katsarou Z, Bostantjopoulou S, Peto V, Kafantari A, Apostolidou E, Peitsidou E. Assessing quality of life in Parkinson's disease: can a short-form questionnaire be useful? Focus on Parkinson's Disease | Acceptance Rate, Rejection Rate In 2016, 6.1 million individuals globally had a PD diagnosis, of whom 1.4 million were from China ().The age-adjusted prevalence rates of PD was more than doubled between 1990 and 2016 in China, which is the largest increase worldwide ().It is estimated that approximately 8.7 million . This analysis builds on the prior work, however, this analysis followed participants over a longer duration of time and also further investigated factors associated with re-hospitalization. doi: 10.1136/jnnp.55.3.181, 28. Of the 7,507 PD patients (mean age 66.59.9 years and disease duration 8.96.4 years at baseline visit), 1919 (25.6%) had a history of a hospital encounter prior to their baseline visit. Evaluation of PDQ-8 and its relationship with PDQ-39 in China: a three-year longitudinal study. Preventing hospitalization is critical where possible, as PD patients commonly experience a deterioration of symptoms during hospitalization and many do not return to their pre-hospitalization status [6, 7, 15, 16]. https://doi.org/10.1371/journal.pone.0180425, Editor: Pedro Gonzalez-Alegre, University of Pennsylvania Perelman School of Medicine, UNITED STATES, Received: October 3, 2016; Accepted: June 15, 2017; Published: July 6, 2017. You are using a browser version with limited support for CSS. broad scope, and wide readership a perfect fit for your research every time. Ou R, Hou Y, Song W, Wei Q, Chen Y, Cao B, et al.. Clinical characteristics and quality of life in Chinese patients with Parkinson's disease beyond 20 years. Visit Springer Nature's open access funding page for information about research funders and institutions that provide funding for APCs. National Parkinsons Foundation, Miami, Florida, United States of America, Roles Women who engaged themselves in regular exercise such as cycling, walking, gardening, cleaning and participating in sports had a 25 per cent lower rate of Parkinson's disease when compared to . To judge whether patients have an understanding of PD, they were required to answer the following questions: (a) What is PD? Methods: A total of 336 PD patients were consecutively recruited from November 2018 to October 2020. The NPF-QII study collects an annual standardized patient questionnaire which includes self-reported hospital encounters in their regular visit. Parkinson's disease affects approximately 1% of the worldwide population older than 60 years. This study aimed to determine the rate of hospital encounters in a cohort followed over 5 years and to identify associated factors. No use, distribution or reproduction is permitted which does not comply with these terms. The disability increases with disease progression, PD patients would become dependent on care from others. Patients with higher AOD levels were more likely to have lower monthly income, better family support, more advanced H&Y stage, and a better understanding of the disease (Table 1). Acceptance rate 32%. These findings are also consistent with limited prior literature on this topic. This study was approved by the Ethics Committee of West China Hospital of Sichuan University. Movement Disorder Society Task Force on Rating Scales for Parkinson's Disease. To publish in npj Parkinson's Disease, authors are required to pay an article processing charge (APC). doi: 10.1016/j.parkreldis.2006.06.006, 25. For advice on what funding is available to you, and help in approaching funders and institutions, please contact ourOpen Research Support Team. More information regarding the release of these data can be foundhere. All participants had provided written informed consent. Uchino BN. Factors influencing acceptance of disability among stroke patients in Tianjin, China: a cross-sectional study. Reactions to disability: a thematic analysis. Applicants must cover the expenses for data processing, however this fee is typically waived for academic researchers or others who can who can document need. As for the chronic diseases, 214 PD patients (63.69%) had no other kinds of chronic diseases (Table 1). Patients with an improved understanding of their disease would be more capable of mediating emotional and behavioral responses provoked by negative events. DC, RO, BZ, WS, and XY did the patient evaluation and data collection. J Neurol Sci. Coelho M, Marti MJ, Sampaio C, Ferreira JJ, Valldeoriola F, Rosa MM, et al.. Dementia and severity of parkinsonism determines the handicap of patients in late-stage Parkinson's disease: the Barcelona-Lisbon cohort. *Correspondence: Xueping Chen, chenxueping0606@sina.com, Creative Commons Attribution License (CC BY). In the present study, we were trying to determine the level of AOD and its effects on QoL in PD patients and determine the influence of sociodemographic variables and disease characteristics on AOD. The Journal of Parkinson's Disease (JPD) publishes original research in basic science, translational research and clinical medicine in Parkinson's disease in cooperation with the Journal of Alzheimer's Disease.It features a first class Editorial Board and provides rigorous peer review and rapid online publication. Internet Explorer). Specifically, neuropsychiatric disorders, such as anxiety and depression, were common in patients with PD, and considered clinically significant in 1389% of the patient population (3). Statistical analysis showed that understanding of PD, family support, and UPDRS-II score were major factors affecting AOD level, and patients with low AOD levels were more likely to have poorer quality of life. To specifically assess AOD, Linkowski et al. Therefore, data on 336 PD patients were included in the final analysis. Patients with a history of hospitalization prior to the baseline were more likely to have a re-hospitalization (HR1.67, P<0.0001) compared to those without a prior hospitalization. It is calculated by dividing the number of citations in the JCR year by the total number of articles published in the five previous years. Publication From 2022, the journal publishes eight issues per annual volume . Careers, Unable to load your collection due to an error. We found that the mean total ADD score of our PD cohort was 87.28 (SD = 8.33), and 55.3% of patients scored below the median of 86.00. J Neurol Sci. Multiple linear regression analysis of PDQ-8. doi: 10.1007/s11136-010-9615-7, 22. Chiang HH, Livneh H, Guo HR, Yen ML, Tsai TY. VAT if applicable), and is applied to Research Report, Review, Hypothesis or Short Communication/Case Report articles. As for the chronic diseases, 214 PD patients (63.69%) had no other kinds of chronic diseases (Table 1). Of the patients with a history of a hospital encounter prior to the baseline visit and at least one follow-up visit (n = 1057), 641 had one or more hospital re-encounters during follow up. Patients with Parkinson's disease are hospitalized 1.5 times more frequently and for longer periods than those without the disease, increasing health-related costs. Parkinson Disease: Top 25 Cited Articles Journals The authors gratefully acknowledge the PD patients for their participation in this study. Parkinsons Disease - Impact Factor, Acceptance Rate - Editage (2017) 15:170. doi: 10.1186/s12955-017-0742-5, 20. (2021) 120:107979. doi: 10.1016/j.yebeh.2021.107979, 41. Submission to final decision 112 days. The required sample size was calculated by PASS 11.0 software, and the statistical parameters were set as follows: = 0.1, effect size (f2) = 0.15, power = 0.9, number of predictors = 30. Macleod AD, Taylor KS, Counsell CE. Dorsey ER, Constantinescu R, Thompson JP, Biglan KM, Holloway RG, et al. Multiple regression analysis with QoL as the dependent variable and the identified significant characteristics, including sex, age of onset, place of residence, education level, disease duration, age of onset, regular exercise, monthly income, H&Y stage, diseases understanding, family support, UPDRS-II score, UPDRS-III score, and total AOD score as independent covariables was used to explore the potential factors that may be related to QoL. Therefore, standardized AOD assessment in routine care may help PD patients receive further therapeutic interventions. Fan X, Lv F. Psychosocial factors associated with self-efficacy for managing chronic disease in patients with chronic heart failure. Given known risks of irreversible clinical decline in patients with PD who are hospitalized, identifying strategies to prevent or decrease hospitalization rates for these patients is critical. Therefore they have higher AOD scores. Acceptance of disability (AOD) is considered an important factor that accounts for psychological adjustment improvement (9). Parkinson's disease, the life quality, the acceptance of disability, disability, acceptance. Neurol Res. This is an open-access article distributed under the terms of the Creative Commons Attribution License (CC BY). Before First, the PD patients were recruited from a single hospital in southwest China, so the findings did not apply to all PD patients. Health Qual Life Outcomes. Regarding income, 104 PD patients (31%) were below 3,000 yuan per month (about $470), while 2,210 yuan was the median disposable income for Chinese residents per month in 2019. Total AOD score and each dimension score among PD patients. About the Journal | Journal of Parkinson's Disease Patients were asked to choose a number from 0 to 10 to represent their understanding of the disease; the higher score indicated that they knew more disease-related knowledge. Each item is rated on a four-point Likert scale (from 1-strongly disagree to 4-strongly agree), and the total score range is from 32 to 128. Tan LC, Lau PN, Au WL, Luo N. Validation of PDQ-8 as an independent instrument in English and Chinese. The age-adjusted prevalence rates of PD was more than doubled between 1990 and 2016 in China, which is the largest increase worldwide (1). Dementia and severity of parkinsonism determines the handicap of patients in late-stage Parkinson's disease: the Barcelona-Lisbon cohort. 2017YFC09007703), grant from Science and Technology Planning Project in Sichuan Province (Grant No. Effects of acceptance of disability on death or dialysis in chronic kidney disease patients: a 3-year prospective cohort study. Alarmingly, our PD patients showed a lack of understanding of the disease, and the mean score of the disease understanding was 3.83 (Table 1). Global, regional, and national burden of Parkinson's disease, 1990-2016: a systematic analysis for the Global Burden of Disease Study 2016. contracts here. The total AOD score was used as the dependent variable in this analysis. (e) How much do you know about the patient care issues? J Adv Nurs. Email for data can be sent to: Fernando Cubillos (fcubillos@parkinson.org). To our knowledge, this is the first study to examine AOD and its correlates among patients with PD in China. Moreover, this scale was revised to 32 items by Groomes and Linkowski in 2007. In general, patients with chronic diseases should receive a psychological intervention program, which is helpful for them to accept the disabilities and adapt to the physical conditions (8). (2017) Hospitalization and rehospitalization in Parkinson disease patients: Data from the National Parkinson Foundation Centers of Excellence. First, the PD patients were recruited from a single hospital in southwest China, so the findings did not apply to all PD patients. Submission Experiences Richardson A, Adner N, Nordstrom G. Persons with insulin-dependent diabetes mellitus: acceptance and coping ability. Table 2. HXHL21042), and the grant from Health Department of Sichuan Province (Grant No. Hely MA, Reid WG, Adena MA, Halliday GM, Morris JG. Patients with atypical and secondary Parkinsonism, patients who refused to be interviewed, patients who had undergone DBS surgery, and patients who were unable to complete the interview were excluded. Clickhereto download our quick reference guide to journal metrics. The original contributions presented in the study are included in the article/supplementary material, further inquiries can be directed to the corresponding author. The APC is determined at the date of acceptance. This condition leads to a great negative impact on patients' and caregivers' lives (7), suggesting that the improvement of psychological adjustment would improve the QoL of PD patients. The initial investigation provides firsthand evidence of the applicability of the AODS-R scale among PD patients in China. You are using a browser version with limited support for CSS. Similarly, a study from Poland also found that disease acceptance significantly affected QoL (28). Kim JH, McMahon BT, Hawley C, Brickham D, Gonzalez R, Lee DH. Parkinsons Dis. Furthermore, disability acceptance and emotional support from friends partially mediated the relationship between functional disability and QoL in individuals with serious mental illness (42). (2011) 11:1658. doi: 10.22605/RRH1658, 33. However, a previous study evaluated the functional capability using instrumental activities of daily living (IADL) scale and found that more independent PD patients were more likely to accept their disease (28). Jenkinson C, Fitzpatrick R. Cross-cultural evaluation of the short form 8-item Parkinson's Disease Questionnaire (PDQ-8): results from America, Canada, Japan, Italy and Spain. This study was approved by the Ethics Committee of West China Hospital of Sichuan University. Clinical Parkinsonism & Related Disorders is a companion journal to Parkinsonism & Related Disorders Clinical Parkinsonism & Related Disorders is the official Journal of the International Association of Parkinsonism and Related Disorders Aims & Scope Kaplan-Meier estimates were obtained and Cox regression performed on time to hospital encounter after the baseline visit to better understand risks over time. The current study results showed that the AOD level in our PD patients affected the QoL of patients; the AOD level was positively correlated with QoL. Luo N, Tan LC, Zhao Y, Lau PN, Au WL Li SC. The results of Pearson correlation analysis showed that the AOD level was associated with UPDRS-II score (P < 0.001) and UPDRS III score (P < 0.001), but not UPDRS-I score (P = 0.07). To our knowledge, this is the first study to examine AOD and its correlates among patients with PD in China. 628,318 Downloads (in 2022) doi: 10.1177/1474515114566157, 36. 1. 2,039 Altmetric mentions (2021), The Journal Impact Factor is defined as all citations to the journal in the current JCR year to items published in the previous two years, divided by the total number of scholarly items (these comprise articles, reviews, and proceedings papers) published in the journal in the previous two years. (e) How much do you know about the patient care issues? Disease-related characteristics included age of onset, disease duration, the presence of the chronic diseases, the Unified PD Rating Scale (UPDRS) UPDRS part I (17), part II (17), UPDRS part III (17), Hoehn and Yahr (H&Y) stage (18), exercise habits, type of medical insurance, and the knowledge of the illness, which were rated by a questionnaire. Longitudinal studies are required to examine the dynamic change of AOD level over time and explore further causal relationships among the affecting factors. (1969) 77:20114. Current Status of Acceptance of Disability and the Correlation With the The higher the score is, the better level of disability acceptance is. (2021) 90:41521. 8600 Rockville Pike This study was supported by grant from National Key Research and Development Program of China (Grant No. The aim of the current study was to evaluate hospital encounters using a five-year follow-up period. government site. Luo N, Tan LC, Zhao Y, Lau PN, Au WL Li SC. The definition of journal acceptance rate is the percentage of all articles submitted to Journal of Parkinson's Disease that was accepted for publication. Statistical analysis showed that understanding of PD, family support, and UPDRS-II score were major factors affecting AOD level, and patients with low AOD levels were more likely to have poorer quality of life. doi: 10.1007/s11136-010-9777-3, 21. Acceptance of disability and its predictors among stroke patients in Taiwan. Luquin MR, Kulisevsky J, Martinez-Martin P, Mir P, Tolosa ES. doi: 10.1007/s10865-006-9056-5, 32. Patients with Parkinsons disease (PD) are reported to have 1.44 times more hospital admissions when compared to age and sex-matched peers, [1, 2] and these admissions are associated with prolonged length-of-stay and increased morbidity and mortality [35]. HHS Vulnerability Disclosure, Help
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